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July 2007
It's been almost four weeks since we began on this adventure to
bring Jude to Iowa City to have his clubfoot corrected at the
University of Iowa Children's Hospital. We left home only a day
and a half after arriving home from China, I don't even think I
quite got UNpacked before I repacked for this trip! I had
contacted the Ronald McDonald house in Iowa City about staying
there during Jude's treatment, and was told to call them the day
we would be arriving, as they cannot accept reservations. Since
there would be so MANY of us staying, we could only fit in a
suite (as opposed to a regular room), and those were quite a bit
harder to come by. So we left home, not quite sure where we
would be staying once we arrived, but knowing that the RMH would
take care of us by either housing us there, or finding us a
local hotel who would offer us reduced rates until the RMH could
make room for us. We split the trip up into two 7 hour driving
days and spent the night on the way up here in lovely Paducah,
Kentucky. Of course, the kids were thrilled we would be staying
at a hotel where they could jump on the beds and swim in the
pool. Jude did amazingly well, he never really had an issue with
the car seat like I imagined he would. And it didn't take him
long to start to enjoy the Baby Song DVDs we play in the car for
the girls, much to the boys' chagrin ;) The next day was a bit
more arduous after a not-quite-so-restful night's sleep. But we
arrived safely in Iowa City and were told by the RMH that we
would be staying at the Comfort Suites in Coralville. The
wonderful news was that this hotel was brand new and had a 100
ft. waterslide! The boys were thrilled and made it into their
suits and into the pool in no time.
Jude had his first appointment with Dr. Ponseti on July 2 at
9:00. I was so nervous, I felt like I was meeting the president!
Dr. Ponseti is such an amazing man and I have so much respect
and admiration for how he has devoted his life to making life
better for countless children who are born with clubfoot. Our
meeting went well, and he gave Jude a thorough once over. We
were grateful to hear that Jude's clubfoot is 'moderate',
completely correctable, and that he has no additional issues. He
estimated that Jude would need 6-7 casts and wasted no time in
getting Jude into his first set of casts. Jude did cry and I had
been prepared for what the day would be like with the help of
some wonderful online buddies whose children had also been
treated by Dr. Ponseti (thanks Jenny and Joyce!) I was
pleasantly surprised to see how well Jude did with the casts, he
didn't seem nearly as bothered with them as I had feared, and it
didn't take him too long to figure out how to get around in them
as easily as he had without.
Unfortunately, July 3rd (my birthday) brought with it a most
unwelcome birthday gift, I woke up with a very painful case of
strep throat. I was so grateful that Chris was still there, so
he could take the kids to the pool while I slept in, waiting for
the Motrin to kick in. While he was at the pool, he had the
pleasure of meeting the hotel owners, Lisa and Lincoln. Lisa had
recognized Jude in his inconspicuous casts, since a good friend
of hers, Sarah, had given her the heads up that we would be
heading to Iowa City for Jude's treatment. Now this is where the
"God thing" comes into it because just a week before I didn't
even know Sarah. She is an avid reader of MyAdoptionWebsite
since she is on an adoption journey of her own. When she read on
Jude's site that we would be in Iowa City, she emailed me,
offering her help in any way she could, even though she no
longer lived here. She got in touch with her church here and had
several wonderful ladies here praying for us. She sent me a list
of fun things to do here and phone numbers of people who would
be willing to help out, or just get together for a visit. I had
not had time to get back to her before we left, but she had said
that she had some great friends who had a hotel who would love
to have us there if it would help us out. Well, you might have
guessed, these were THE friends. Seems that God wanted us to be
at the Comfort Suites one way or another. And meeting Lincoln
and Lisa was such a blessing. They have four beautiful kids, all
around the ages of our kids, and Chris and I both really enjoyed
getting a chance to meet them.
Chris left the next day (after a series of fiascos with Delta
NOT getting Chris' flight out and me having to drive the 2 1/2
hour round trip to the airport way too many times) and we were
all sad for him to leave. No one sadder than me, I don't think,
as I was beginning to fully understand that this meant that I
was in charge of ALL of the kids. Alone. And I was still feeling
quite sick. Yeah, you get the picture, I was feeling pretty
sorry for myself ;) By Jude's appointment on Friday I was
feeling much better, thanks to some antibiotics (thanks
Connie!!) and things were looking up. Jude's casting didn't go
quite as well since by this point, he knew the casting was
uncomfortable, at best. He started to cry as soon as they came
at him to cut the old cast off, even though this part is
completely painless. During the casting he got quite agitated
and would not be appeased by any of the toys offered to him by
the ever-patient Ponseti staff. As soon as we were done with
Jude's casting, we headed back to the hotel to check out and
leave for Omaha, NE to visit the Nowlin clan. When I got up to
the check out at the hotel I was told that Lincoln had 'taken
care of everything' and that we had not been charged anything
for our time there. I was speechless. We had been there already
close to a week. Chris and I had never felt God's hand reaching
into our lives in such a generous way from such an unexpected
place and we were blown away. Thank you Lisa and Lincoln, you
guys are AWESOME :)
Our drive to Omaha was uneventful (in a very good way!) and we
were all so excited to finally arrive at the Nowlin abode. They
moved from Altus to Omaha three years ago and we have not been
able to make our way up to visit until now. Once we got close, I
was busy looking for an address, but should have just been
looking for the house that has that Chenoa 'touch' instead. I
spotted it way before I could read the street number, Chenoa and
Tom have done a fantastic job redoing their house, it's
adorable. The kids ran around like crazy people for awhile,
while I tried to get things unpacked with a very heavy
plaster-laden boy on my hip. The bad thing about moving around
withOUT a husband and a with a newly adopted child is that the
two don't mix! Jude refused to be put down (and I really
couldn't blame him) but yet I had to get all the kids' stuff out
of the car and into the house. It didn't go well. In fact, I
didn't really unpack during the whole week that we were there.
Chenoa and I had a great time hanging out, during the very few
times that we were not being beckoned by one of our kids to do
their bidding. Her husband Tom was away during the first half of
our stay there and she and I found ourselves knee deep in
laundry and rubble much of the time. Good thing God has blessed
her with an amazing dose of hospitality and patience, because
with our family there, she definitely needed it! Especially
after Asher announced to us all that he wasn't feeling well by
vomiting profusely in her hallway. Seems Asher was coming down
with strep throat also. Now let me tell you, if you think
cleaning up throw up is misery, try doing it with a screaming
toddler in the next room who is just dying to get to you. At
that moment I was thinking that cleaning up vomit in sweet
silence might not be such a bad thing ;) Jude didn't want to
have anything to do with Miss Chenoa (he hasn't fallen in love
with her like my other boys' have YET) so he was not happy
having to watch me from afar. In spite of Asher's illness (strep
throat confirmed by a very late night emergency room visit) we
were able to have a great time in Omaha. We did some of our
usual bargain-hunting, visited the Omaha Zoo, and spent a very
memorable evening at a place called The Pizza Machine. It is
like a Chuck E. Cheese times 100. Huge buffet: icees, tacos,
nachos, pizza, cookies, and ice cream galore. Carnival rides
INside. Bumper cars. Flashing lights that have the potential to
cause epileptic seizures. Kiddie heaven. An Isabelle nightmare,
in other words. |
Jude's feet before his first cast
Dr. Ponseti putting on Jude's first cast
Jude's feet after the first cast was removed
After Jude's second cast
After Jude's third cast
After Jude's fourth cast
After fifth cast
Enjoying his first time in a swing
Great times with awesome friends in Omaha
Hanging out at the pool with some great new friends
Having a 'blast' at the Johnson County Fair
Dr. Morcuende applying Jude's sixth cast |
She went nuts. Definitely an
overdose of stimulation for her little system. I think I lost
her a half dozen times, she was just running around like a
maniac. It was craziness. Thankfully we were able to leave there
as a family intact and with smiles on our faces.
By Wednesday Asher was feeling a bit better from his antibiotic
so the girls, Jude and I made the trip from Omaha to Iowa City
for Jude's third casting, letting Dalton and Asher stay and play
in Omaha. We left very early as I wanted to be sure that we
would not be late for Jude's appointment. We arrived in enough
time to take a quick trip to Target for some Motrin for Jude and
some popcorn for the girls. When she was cutting off Jude's
cast, Nurse Maria told me that Dr. Morcuende would be taking
over Jude's treatment for several reasons, one being that Jude
is a bit more difficult to cast since he's a feisty 17 month
old, and most children are casted as infants and Dr. Ponseti is
93! Dr. Morcuende has been working with Dr. Ponseti for 6 years
and works with him on many cases. Dr. Ponseti will still be
checking Jude's casts and following his progress at each visit.
The casting went well, with Dr. Ponseti and Morcuende noting
that Jude's left foot is a bit stiffer than the right and is not
responding as well as the other foot to the casting. Jude, as
predicted, cried through the entire casting process, eventually
crying himself to sleep. I must admit, as a mother who wimps out
at immunizations for her kids, this has been difficult. Jude
cries "Mama, mama" the entire time. Of course, I know this
casting is the easiest, most painless and most successful way to
treat his feet. But it doesn't make my heart hurt any less when
I hear his cry. He fell asleep quickly when I put him in the
car, as did the girls, and they didn't wake up until I pulled
the car into a McDonald's parking lot in Des Moines, on our way
back to Omaha. We arrived back at the Nowlins just in time to go
to watch Zach's baseball game and spend some time at the park.
Jude had his first experience in a swing and absolutely loved
it. I was reminded again what a blessing adoption is as I
watched our new son radiate happiness in simple, newfound joys.
The rest of our time in Omaha was great, punctuated with a few
miserably humbling moments: Isabelle tinkling on Chenoa's
beautiful leather couch and an unnamed *someone* not quite
making it to the toilet in time in the middle of the night. And
by the time we left Dalton had been diagnosed with strep and
Isabelle was showing symptoms. But Tom and Chenoa made us all
feel so 'at home'... it was a fantastic time we feel blessed to
have been able to share during our time up here, and a reminder
of why we love the Nowlins so much: they're inspiring as fellow
believers, incredible friends and they PUT UP with all of us!!
On Saturday it was time for us to head back to Iowa City. We
were all sad to be leaving Omaha, but we were all so glad for
the time we had been able to spend on our mini-vacation at Camp
Nowlin :) On the drive back to Iowa City I called the Ronald
McDonald house to see if they had a suite available for us, and
was surprised to hear that they did. We got settled in on Sunday
and as soon as the kids realized we had a little mini-apartment
at our disposal, they freaked. They ran around like we were in a
castle :) Asher asked how long we'd be staying and I told him
probably two weeks. He looked sad and I asked him if two weeks
was too long. He replied, "No, it's not long ENOUGH!" Kids...
you gotta love their perspective!
Our time at the RMH has been great. Lots of incredibly kind
people who work here and/or are staying here while their little
ones are being treated at the U of I Children's Hospital. I have
met four other Ponseti families who are staying here and I've
learned a lot since three of the four families were treated
unsuccessfully by other doctors before coming to Iowa City. I
have met countless other families at the hospital with similar
stories. It is a shame that so many children have to go through
so much unnecessary pain at the hands of inexperienced doctors.
It is a reminder of how blessed we are to NOT have had to endure
some misguided treatment before coming to the best! God had His
hand on us, guiding us here, there is no doubt. I need to remind
myself of all I have to be grateful for during this time, not
what I am missing (if only it were that easy ;))
Jude's treatment has been going well. He was casted with his
sixth cast yesterday and, unfortunately, the castings are
becoming more and more unpleasant for him. By unpleasant I mean
difficult to endure. Jude knows now what is going on and cried
yesterday as soon as he spotted the nurse. It was humorous to
us, but I know it was stressful for him, knowing what was
coming. The good news is that Jude's right foot, although not
quite where it needs to be yet, might be ready for the tenotomy
on Monday. A tenotomy is when the heel cord is nicked so that
the foot will be able to lay flat on the floor, once the casts
are off. Right now his feet point down, like a ballerina,
because his heel cords are so tight. We have scheduled the
tenotomy for the 30th and I am saying my prayers that it all
comes together on that date, so we don't have to come back for
another casting. Chris will be flying up on Monday so we can
drive home on Tuesday. Home. HOME! I am LOVING the sound of that
word!! Jude's last cast will stay on for 3 1/2 weeks to allow
his heel cord to completely heal. Then he will wear special
shoes with a bar in between for 22 hours/ day, until his feet
relearn where they are supposed to be, probably 3-6 months. It's
amazing, as soon as those casts come off, his little feet want
to go back to their original position!
I will be updating once again when we are home and settled. I'll
also be posting to our blog again... soon I promise! I have lots
of cute pics of everyone during our time here, so stay tuned! |
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