Saturday, July
2, 2011
WE ARE
HOME!
We survived our few weeks home! Let's just say we were happy to
make it back to the United States on Thursday, June 16th. Our
trip home was quite the adventure!
We left the White Swan Hotel
in Guangzhou at 8:30 AM on June 16th. Piper did get sick in the
van on the way to the airport, but we were ready this time! When
we arrived at the airport we found out our flight was delayed an
hour and ten minutes. We were a little concerned that we might
miss our flight to Chicago that was scheduled to leave at 4:10
PM. I e-mailed my Dad to let him know we might miss our flight
and have to catch the flight to Dulles. The other funny thing
that happened was the Air China worker asking our guide if I had
a letter from my doctor allowing me to fly since I was pregnant.
I checked with all the airlines before we left and since I was
under 28 weeks pregnant I didn't need a doctor's note. Our guide
had to fill our some paper that said I was under 28 weeks
pregnant and I was allowed to be issued my ticket. Once we
boarded the plane we sat another forty five minutes until our
plane finally took off for Beijing. We made it to Beijing after
our connecting flight to Chicago had already taken off. We
waited for what seemed like forever to get our luggage before we
ran up to the United counter. We told them we missed our flight
to Chicago because we were delayed in Guangzhou. The United
worker said there were seats left on the last flight to the
United States that would land in Dulles. We were so relieved,
but she said we had to get a letter from Air China that said the
plane in Guangzhou was delayed which caused us to miss our
flight so we wouldn't be charged the fee to switch flights. Erik
ran over to the Air China counter and had to explain to the
worker that we needed this letter about our plane being delayed.
Erik came running back with the letter to give to the United
worker and we ran off to get through customs and security. We
got to the gate at 5:40 PM just as the plane started to board.
We had to call my Dad to tell him to pick us up at Dulles and
not at Philadelphia. I was frantic! My Dad could tell I was
about to lose it when I was talking to him on the phone. We
boarded the plane and I could finally relax! We were finally on
the last plane that would take us home! Piper did very well on
the flight home. She only got sick one time! Of course it was
the first time Erik got up to go to the bathroom! He came back
to Piper and me being covered in throw up. I had packed two
additional outfits for Piper and two extra shirts for me, but I
didn't pack an extra pair of shorts. So, I had 11 hours left on
the flight home and I smelled like throw up! We arrived in
Dulles around 7:25 PM. I was so happy to finally be home! My Dad
met us at the airport and we drove the two hours home!
Our first week home was tough! Piper didn't sleep for five days
and we were totally exhausted! She was so scared and it was so
hard to see her so upset at night. I called the doctor the next
day to schedule her first appointment with our pediatrician. We
told them all of our concerns about Piper and they got us in to
see Dr. Schied right away! We were so thrilled to be seeing a
doctor. Piper had her appointment on Monday, June 20th. I spent
three hours at the doctor's office with Piper. We found out her
oxygen level is really in the low to mid 80's, even though the
paperwork from China said her oxygen levels were in the mid to
upper 90's. She was given an antibiotic for a sinus infection.
We were given the paperwork to get blood work done on Piper. We
also will be having an uppper GI study done on July 1st. We also
go for our first appointment with the cardiologist on June 30th.
We ended up going to the ER on June 24th. Piper started to cough
and the doctor's wanted us to take her to the hospital to see if
she was developing pneumonia. I spend six hours with her at the
hospital. They checked her oxygen levels and heart rate. She had
a chest x-ray done too! The x-ray showed her enlarged heart and
what they were presuming was pneumonia. It was hard to read the
x-ray because they were not sure if her air sacs were just not
opened when the x-ray was taken. They did not do anything since
she was already on an antibiotic for her sinus infections. Piper
returned to the doctor's office on Monday, June 27th for a
follow up from our visit to the ER!
Piper is doing much better now! She is sleeping through the
night in the crib next to my side of the bed. Now that we are
all getting a good night of sleep things are going well! Piper
continues to bond with us each day! She is still not a great
eater, but is at least she is trying new foods each day. We are
still very concerned about her coughing after drinking and still
getting car sick! Piper adores her big sister and two big
brothers and they adore her too! She loves to copy everything
they do! It is so wonderful to see them so loving toward their
new sister! The adjustment for Sophia, Graham, and Parker has
been pretty easy. I think Parker is a little sad about not being
the baby in the family now! Piper is able to say Daddy Momma,
and Uh Oh! Her voice is so cute! She has learned so much in the
short time she has been home with us! She loves to color with
crayons or chalk, ride on Sophia's little battery powered car
and play with bubbles. |
I am home!
I love my big sister!
Meeting my big sister and big brothers for the first time!
My EKG with Mommy!
Getting extra oxygen after my echo!
Lunch at Chick-fil-A after my upper GI study!
|
Erik and I took
Piper to the hospital for her first cardiology appointment. This
is my best attempt to explain what we heard from the
cardiologist! We were very impressed with the cardiac center!
They made us feel like Piper was the most important patient
there today! We spent four hours having tests done on Piper's
heart and speaking with her cardiologist! Piper had an EKG and
an echo. She needed to be sedated for the echo. There was no way
Piper could have stayed still long enough to get all of the
pictures of her heart they needed without being sedated! The
technician captured over 130 images of her heart! It took about
50 minutes to get all of the images of her heart. Her diagnosis
is a double right ventricle outlet. This essentially means that
both her pulmonary artery and aorta are coming out of the right
side of her heart. She also has a rather large VSD. The VSD is
actually allowing the deoxygenated blood and the oxygenated
blood to mix. The cardiologist said that this is natures way of
keeping Piper's heart working and allowing oxygen to get into
her body! Piper will be scheduled for a cath lab in the next
week or two. This will allow the cardiologist to get more
detailed information about Piper's heart functioning! She will
present Piper's information to the other cardiac doctors. They
will determine which of the two options for surgery will be best
for Piper's heart condition! We feel very blessed to have A.I.
Dupont Hospital so close to our home. They have taken such good
care of all of our children!
Piper also had an upper GI study done at the hospital to see if
we can figure out why she is coughing after she drinks and still
getting sick sometimes after she eats! I was not able to be in
the room with her while the test was being done because of the
radiation from the x-ray. Erik had to do this one all alone!
Piper was not a happy camper! Erik said he had to hold her down
on her legs and the technician had to hold her head and inject
barium into her mouth while she was laying flat on the table!
Erik said he was very worried about Piper because she turned
blue because she was crying so hard! I was sitting outside the
room and down the hall a little bit and I could hear her crying.
It was hard to not be there to comfort her!
We were fortunate to also have a speech and language pathologist
observe the study. She was able to provide her insight into our
concerns with Piper. The initial results of the upper GI study
were that her anatomy is all working fine and there are no holes
present. We were happy to hear that news. However, she does have
some reflux. After speaking with the speech and language
pathologist, she told us it is not uncommon for children with
heart defects to have swallowing issues. She said there is not
scientific data to correlate the two together, but it is a
common occurrence. We also found out that Piper has a large
blood vessel in her heart that is pushing up against her
esophagus. It is not constricting it, but is is pushing up
against it. This may be causing the issues we see when Piper is
eating or drinking. The speech and language pathologist
suggested that we have a swallowing test done after Piper's
heart is surgically corrected. She works with the inpatients and
will happily do the test for Piper while she is recovering from
her heart surgery. We are hoping that once Piper's heart is
fixed that she will have better success with eating and
drinking.
We also had to have Piper give blood for all the tests that our
pediatrician ordered for children who are internationally
adopted. This was another traumatic event for Piper. They
couldn't get her blood drawn with the first stick. They had to
try again and they were able to get some blood, but her blood
was so slow moving we thought they would never be done
collecting her blood. They had to stick her one last time to
finish getting all the blood they needed. It was so hard to
watch her be so upset again!
We are so blessed to have Piper join our family! She is one very
special little girl. We love you Piper Olivia!!!!! |