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We're Home

Saturday, July 2, 2011
WE ARE HOME!


We survived our few weeks home! Let's just say we were happy to make it back to the United States on Thursday, June 16th. Our trip home was quite the adventure!

We left the White Swan Hotel in Guangzhou at 8:30 AM on June 16th. Piper did get sick in the van on the way to the airport, but we were ready this time! When we arrived at the airport we found out our flight was delayed an hour and ten minutes. We were a little concerned that we might miss our flight to Chicago that was scheduled to leave at 4:10 PM. I e-mailed my Dad to let him know we might miss our flight and have to catch the flight to Dulles. The other funny thing that happened was the Air China worker asking our guide if I had a letter from my doctor allowing me to fly since I was pregnant. I checked with all the airlines before we left and since I was under 28 weeks pregnant I didn't need a doctor's note. Our guide had to fill our some paper that said I was under 28 weeks pregnant and I was allowed to be issued my ticket. Once we boarded the plane we sat another forty five minutes until our plane finally took off for Beijing. We made it to Beijing after our connecting flight to Chicago had already taken off. We waited for what seemed like forever to get our luggage before we ran up to the United counter. We told them we missed our flight to Chicago because we were delayed in Guangzhou. The United worker said there were seats left on the last flight to the United States that would land in Dulles. We were so relieved, but she said we had to get a letter from Air China that said the plane in Guangzhou was delayed which caused us to miss our flight so we wouldn't be charged the fee to switch flights. Erik ran over to the Air China counter and had to explain to the worker that we needed this letter about our plane being delayed. Erik came running back with the letter to give to the United worker and we ran off to get through customs and security. We got to the gate at 5:40 PM just as the plane started to board. We had to call my Dad to tell him to pick us up at Dulles and not at Philadelphia. I was frantic! My Dad could tell I was about to lose it when I was talking to him on the phone. We boarded the plane and I could finally relax! We were finally on the last plane that would take us home! Piper did very well on the flight home. She only got sick one time! Of course it was the first time Erik got up to go to the bathroom! He came back to Piper and me being covered in throw up. I had packed two additional outfits for Piper and two extra shirts for me, but I didn't pack an extra pair of shorts. So, I had 11 hours left on the flight home and I smelled like throw up! We arrived in Dulles around 7:25 PM. I was so happy to finally be home! My Dad met us at the airport and we drove the two hours home!

Our first week home was tough! Piper didn't sleep for five days and we were totally exhausted! She was so scared and it was so hard to see her so upset at night. I called the doctor the next day to schedule her first appointment with our pediatrician. We told them all of our concerns about Piper and they got us in to see Dr. Schied right away! We were so thrilled to be seeing a doctor. Piper had her appointment on Monday, June 20th. I spent three hours at the doctor's office with Piper. We found out her oxygen level is really in the low to mid 80's, even though the paperwork from China said her oxygen levels were in the mid to upper 90's. She was given an antibiotic for a sinus infection. We were given the paperwork to get blood work done on Piper. We also will be having an uppper GI study done on July 1st. We also go for our first appointment with the cardiologist on June 30th. We ended up going to the ER on June 24th. Piper started to cough and the doctor's wanted us to take her to the hospital to see if she was developing pneumonia. I spend six hours with her at the hospital. They checked her oxygen levels and heart rate. She had a chest x-ray done too! The x-ray showed her enlarged heart and what they were presuming was pneumonia. It was hard to read the x-ray because they were not sure if her air sacs were just not opened when the x-ray was taken. They did not do anything since she was already on an antibiotic for her sinus infections. Piper returned to the doctor's office on Monday, June 27th for a follow up from our visit to the ER!

Piper is doing much better now! She is sleeping through the night in the crib next to my side of the bed. Now that we are all getting a good night of sleep things are going well! Piper continues to bond with us each day! She is still not a great eater, but is at least she is trying new foods each day. We are still very concerned about her coughing after drinking and still getting car sick! Piper adores her big sister and two big brothers and they adore her too! She loves to copy everything they do! It is so wonderful to see them so loving toward their new sister! The adjustment for Sophia, Graham, and Parker has been pretty easy. I think Parker is a little sad about not being the baby in the family now! Piper is able to say Daddy Momma, and Uh Oh! Her voice is so cute! She has learned so much in the short time she has been home with us! She loves to color with crayons or chalk, ride on Sophia's little battery powered car and play with bubbles.


I am home!


I love my big sister!


Meeting my big sister and big brothers for the first time!


My EKG with Mommy!


Getting extra oxygen after my echo!


Lunch at Chick-fil-A after my upper GI study!

 
Erik and I took Piper to the hospital for her first cardiology appointment. This is my best attempt to explain what we heard from the cardiologist! We were very impressed with the cardiac center! They made us feel like Piper was the most important patient there today! We spent four hours having tests done on Piper's heart and speaking with her cardiologist! Piper had an EKG and an echo. She needed to be sedated for the echo. There was no way Piper could have stayed still long enough to get all of the pictures of her heart they needed without being sedated! The technician captured over 130 images of her heart! It took about 50 minutes to get all of the images of her heart. Her diagnosis is a double right ventricle outlet. This essentially means that both her pulmonary artery and aorta are coming out of the right side of her heart. She also has a rather large VSD. The VSD is actually allowing the deoxygenated blood and the oxygenated blood to mix. The cardiologist said that this is natures way of keeping Piper's heart working and allowing oxygen to get into her body! Piper will be scheduled for a cath lab in the next week or two. This will allow the cardiologist to get more detailed information about Piper's heart functioning! She will present Piper's information to the other cardiac doctors. They will determine which of the two options for surgery will be best for Piper's heart condition! We feel very blessed to have A.I. Dupont Hospital so close to our home. They have taken such good care of all of our children!

Piper also had an upper GI study done at the hospital to see if we can figure out why she is coughing after she drinks and still getting sick sometimes after she eats! I was not able to be in the room with her while the test was being done because of the radiation from the x-ray. Erik had to do this one all alone! Piper was not a happy camper! Erik said he had to hold her down on her legs and the technician had to hold her head and inject barium into her mouth while she was laying flat on the table! Erik said he was very worried about Piper because she turned blue because she was crying so hard! I was sitting outside the room and down the hall a little bit and I could hear her crying. It was hard to not be there to comfort her!

We were fortunate to also have a speech and language pathologist observe the study. She was able to provide her insight into our concerns with Piper. The initial results of the upper GI study were that her anatomy is all working fine and there are no holes present. We were happy to hear that news. However, she does have some reflux. After speaking with the speech and language pathologist, she told us it is not uncommon for children with heart defects to have swallowing issues. She said there is not scientific data to correlate the two together, but it is a common occurrence. We also found out that Piper has a large blood vessel in her heart that is pushing up against her esophagus. It is not constricting it, but is is pushing up against it. This may be causing the issues we see when Piper is eating or drinking. The speech and language pathologist suggested that we have a swallowing test done after Piper's heart is surgically corrected. She works with the inpatients and will happily do the test for Piper while she is recovering from her heart surgery. We are hoping that once Piper's heart is fixed that she will have better success with eating and drinking.

We also had to have Piper give blood for all the tests that our pediatrician ordered for children who are internationally adopted. This was another traumatic event for Piper. They couldn't get her blood drawn with the first stick. They had to try again and they were able to get some blood, but her blood was so slow moving we thought they would never be done collecting her blood. They had to stick her one last time to finish getting all the blood they needed. It was so hard to watch her be so upset again!

We are so blessed to have Piper join our family! She is one very special little girl. We love you Piper Olivia!!!!!

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